I have been fortunate in the fact that my parents told me at a young age about sickle cell and the fact that I carry the sickle cell trait. At the time, I wasn’t entirely sure what it meant or the full ramifications of having the disease. It was only later in life, after meeting people who lived with sickle cell and sadly are no longer with us, that I began to truly understand just how serious sickle cell really is. That’s why this month is so important – not just to me, but to many in our community.

September marks Sickle Cell Awareness Month in the UK – a time to shine a light on one of the most common genetic blood conditions affecting our communities, yet one that remains under-discussed and often misunderstood. At Together We Ride CIC, we believe cycling isn’t just about miles and medals – it’s about community, wellbeing, and standing in solidarity with those facing challenges that extend far beyond the bike.

What is Sickle Cell?

Sickle cell disorder (SCD) is a serious inherited blood condition that affects the shape of red blood cells. Instead of being round and flexible, they can become crescent or “sickle” shaped, making it harder for them to move through blood vessels. This can cause episodes of extreme pain (known as “crises”), increased risk of infection, anaemia, and, in some cases, life-threatening complications.

In the UK, around 17,500 people live with sickle cell disorder, and more than 300 babies are born with the condition each year. The majority of those affected come from African and Caribbean backgrounds, making it an issue that sits close to home for many in our cycling community.

Why Awareness Matters

Despite being the fastest-growing genetic condition in the UK, sickle cell still doesn’t receive the same level of attention or resources as other health conditions. Delays in diagnosis, lack of awareness in emergency settings, and unequal access to specialist care are challenges that patients and families regularly face.

Raising awareness means pushing for better healthcare, improved research, and stronger community support. It also means breaking down stigma – making sure people understand that this isn’t just a “minor” condition, but a serious health challenge that deserves proper recognition.

Community, Health & Cycling

At TWR CIC, we often say that cycling is about more than the bike. It’s about keeping our bodies strong, our minds healthy, and our communities connected. While exercise like cycling can’t cure sickle cell, movement and community activity can play a role in overall well-being.

This September, we’re dedicating space on our blog to encourage riders and readers alike to:

• Learn more about sickle cell disorder and how it affects people in the UK.
• Support local charities like the Sickle Cell Society – the UK’s leading organisation supporting individuals and families.
• Start conversations within our cycling groups and families to break down stigma and build empathy.
• Ride in solidarity – whether it’s a group ride or your solo spin, dedicate some miles this month to those living with sickle cell.

How You Can Get Involved

• Donate or Fundraise: The Sickle Cell Society relies on donations to deliver vital services.
• Spread the Word: Share information on social media, or simply talk to your network. Awareness grows one conversation at a time.
• Educate Yourself: Learn the signs of a sickle cell crisis so you can support someone if needed.

Final Word

As a community, we pedal forward together – not just for fitness, but for fairness, health, and equality. Sickle cell awareness is about recognising an urgent health issue that affects thousands across the UK, particularly within African and Caribbean families, and doing our part to support change.

This month, when we ride, let’s ride with purpose.
Let’s ride for sickle cell awareness.

Together We Ride – Together We Rise.